Monday, February 23, 2009

I've been a little sad lately...

I've been kinda sad lately, and let me tell you why...

Just as any mother with a child born with a stroke would, I always hoped for the best, and we seemed to always get it. Olivia overcame her seizures, is bright, developmentally appropriate, and very healthy. Actually, even healthier then a lot of babies her age.

Maybe because everything was so awesome I was in denial. I knew the statistics... most babies with a stroke (or any other major brain injury) end up with cerebral palsy. I don't know if she will be diagnosed, but I have good feeling she will. My next doctor's apt is in 6 weeks.

She started walking about 2 weeks ago, and we are overjoyed. She is very smart and right on target developmentally. Cerebral palsy doesn't really effect how smart you are. It effects motor function...

She definitely has some incoordination and a limp when she walks. She leans to her left side with each step; her body seems to be curved to the left. Her left foot doesn't move and her left leg doesn't bend like her right one. Her left arm, although moves well, when she walks she has to keep it curled up most the time to keep her balance.

I feel somewhat guilty for being sad about her minor motor problems, especially when comparing it to some other mothers who had much poorer outcomes for their babies. She lived and is doing so well. I can't help but be a little sad, though, when thinking about the fact that she will most likely have limitations in life beyond her control (even though most of us do, they just aren't so apparent).

Will she ever be able to run? Will she feel inferior to her sister? Will she be discrimitated against? Will she be made fun of? Will she live a normal life?

When you guys see her walk, you may not even notice what I described. After all, she is a baby who just learned to walk. I've been watching her a lot and have noticed the things mentioned above. Don't get me wrong, she walks really well. It is just not as smooth or easy as most kids.

Again, we appreciate all of you who have been our support through our journey since Olivia has been born. You never know what the future will bring, and I am always optimistic. We are so lucky for what we have, and am certain whatever happens will have great purpose and meaning for our family and especially beautiful Olivia.

5 comments:

Sssarah said...

I love you! Call if you need to talk ok? And I think it's ok to be a little sad sometimes. I am always amazed by your positive outlook and optimism! Keep the faith darlin!

RaLene said...

I think that it can always be sad when the dreams that you have for your children may never materialize. You actually have to mourn those original dreams and hopes before you can face creating new ones. It would be very normal, natural, and even healthy to be sad. It doesn't mean you aren't grateful, which I know you are. We, as parents, always just want the very best for our children, and hurt for them when we feel that they will struggle or be ostracized or something. Our hearts hurt for a future they may not even understand. Fortunately Olivia is a doll and seems very strong in personality, those things will be a blessing to her and help carry her through whatever obstacles she may face in her future. It's o.k. to be sad, but I can already see you are keeping your chin up and hoping for the best. Love always from me.

Brie said...

I can only imagine how long the next six weeks will seem. Olivia is so adorable and has such a great family. I know you will provide her with all the tools she needs to deal with any bump in the road. We will keep you guys in our prayers but in the mean time, lets get together and waste some time watching kids play!

natalie a said...

I have never experienced the joy or the struggles of a child with developmental issues - so take it for what it's worth, but that amazing little girl is too perfect to worry. Her heart is amazing and she has amazing parents - enough said! Don't fret! If you ever just want to chat - 801.380.0320

Super B said...

I am sorry that you are sad. I think you have a pretty good attitude though and we are sure that Heavenly Father has a plan for Olivia and she is very special!